Information, Education, Support -Twin/Twin Transfusion Syndrome | Twin To Twin Transfusion Syndrome Foundation
Provides information, education, and advocacy to health care providers and the general public around the issue of twin to twin transfusion syndrome, including forms of TTTS called TAPS (twin anemia polycythemia sequence), SIUGR (selective intrauterine growth restriction) and TRAP (twin reversed arterial perfusion sequence). Materials include phone and social media resources for families diagnosed, at risk and those that have delivered special needs children as a result of TTTS.
Data provided by
211 Cleveland
Physical Address
411 Longbeach Pkwy., Bay Village, OH 44140
Hours
Varies
Voice
Application process
Phone for information 24 hours a day, 7 days a week, If there is no answer please leave a message as all messages will be returned.
Fee
Free
Eligibility
No restrictions, although individual support and information is available to women that have been diagnosed with Twin-to-Twin Transfusion Syndrome, families that have one or both twins with cerebral palsy, and (or) developmental delays due to TTTS.
Service area
United States
Agency info
Twin To Twin Transfusion Syndrome Foundation
Provides educational, emotional, and financial support to families where a woman who is pregnant with identical twins or higher multiples has been diagnosed with Twin-to-Twin Transfusion Syndrome. If the condition is undiagnosed and untreated, it can result in death or birth defects for one or all multiples in the pregnancy.